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Will you #BeTheChange for families with children who have learning disabilities in 2016?

  
A key principle of primary prevention is supporting and assisting parents and families at least as much as the child directly. Yet research8  by ENABLE Scotland highlights significant gaps in early years support for families of children who have learning disabilities. Many families face significant barriers accessing support, services, advice, and information, during the formative early years of their disabled child’s life.
 
ENABLE Scotland’s 10 Point Plan to Get it Right for Disabled Children from the Start9 makes strong policy and practice recommendations to improve the experiences of families, children, and professionals alike.
 
We would be keen to work with parliament in 2016-2021 to #BeTheChange for families with children who have learning disabilities.  
 

Why we need you to #BeTheChange:
 
“There have been days where I’ve just been on the floor, just crying all day, because I just don’t know how to cope, I don’t know where to go, I just don’t know what to do”
 
  • More than 50% of families with children who have learning disabilities have not been through a social care assessment of need.

  • 70% of families with children who have learning disabilities do not receive a social care support package.

  • Only 18% of families had received advice and information on services available after their child’s diagnosis of a learning disability. 

  • Parents used the following words to describe their experience of the school system for their child: stressful (81%); battle (71%); Alone (45%); Lack of information (61%).

  • More than 80% of parents said problems with their child’s school had impacted on their ability to work; more than 50% are unable to work! 75% said problems at school had caused heightened stress at home. 

 



 Visit enable.org.uk/enablethevote to find out more about our campaign to support people in Scotland who have learning disabilities to have their vote.

 


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8.   ENABLE Scotland, Exploring Concerns around a Child’s Diagnosis of a Learning Disability (including ASD): Experiences of Parents, Young People and Professionals in Scotland, 2015
 
 
9.   ENABLE Scotland, Exploring Concerns around a Child’s Diagnosis of a Learning Disability (including ASD): Experiences of Parents, Young People and Professionals in Scotland, Executive Summary,  2015 http://www.enable.org.uk/enabledirect/publications/Documents/Research/Enable-Research%20Report-Executive-Summary-Exploring-Concerns-Around-a-Child%E2%80%99s-Diagnosis-of-a%20Learning-Disability.pdf​ 
 

 
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